Patientslikeme

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Contents

[edit] CommerceNet: Companies, Code, Community

8 January 2009, by digipharma1 backer of PLM

[edit] Social Networking For Medical Patients, CBS Evening News: Patients Joining Forces Online To Find New Treatments - CBS News

6 January 2009, by biblioizp

[edit] The Wisdom of Crowds

5 January 2009, by OrganizedWisdom http://organizedwisdom.com/ PatientsLikeMe : Patients Helping Patients Live Better Every Day http://www....

[edit] PatientsLikeMe : Patients Helping Patients Live Better Every Day

2 January 2009, by helen.trim

[edit] Revolutie in de zorg: naar een videoconsult - Emerce

2 January 2009, by


<img alt="" height="1" width="1">
<a href="http://news.google.com/news/url?sa=T&ct=us/7-0&fd=A&url=http://www.emerce.nl/nieuws.jsp%3Fid%3D2818236&cid=0&ei=P81lSeHfJpXM8ASzroz9BA&usg=AFQjCNEJWEMHymQt9UPEjvUVbqZ3opUDFw">Revolutie in de zorg: naar een videoconsult</a>
Emerce, Netherlands - <nobr>Jan 2, 2009</nobr>
Een greep: Patientslikeme.com, Diabetesweb.nl, Sugarstats.com, Dailystrength.org. Op YouTube zijn honderden filmpjes te vinden van operaties en andere ...

[edit] 2008 Year-End Wrap-Up

2 January 2009, by Matt Another year, a few more blogs. 2008 has been a pretty groovy year for WordPress.com and the company behind it, Automattic. We doubled in size and brought new talent on board including some through the acquisition of two companies: Intense Debate and PollDaddy. This fine crew has helped bring new features to your dashboards, along with [...]

[edit] The Value of Openness: The PatientsLikeMe Blog » 10000 MS Patients ...

1 January 2009, by Lori Piscatelli Scanlon As we end 2008, more than 10000 patients in our community are coming together to share their life experiences on PatientsLikeMe. How much experience is that? Try more than 32000 YEARS of collective experience with MS. ...

[edit] CommerceNet News: PatientsLikeMe Launches Community for People ...

31 December 2008, by unknown "PatientsLikeMe, the leading online community for patients with life-changing conditions, announces the launch of its newest community for people with fibromyalgia. Patients can chart the course of their disease by answering simple ...

[edit] CommerceNet News: PatientsLikeMe.com Aggregates Data Payer ...

31 December 2008, by unknown "PatientsLikeMe, a social networking Web site, provides an interactive online community for patients with what Ben Haywood, a co-founder, calls 'life changing illnesses:' Parkinson's disease, multiple sclerosis, ALS (Lou Gehrig's ...

[edit] Webovinky 4 - Twitter, online lékařské poradny a vizuální nakupování - LUPA

30 December 2008, by


<img alt="" height="1" width="1">
<a href="http://news.google.com/news/url?sa=T&ct=us/6-0&fd=A&url=http://www.lupa.cz/clanky/webovinky-4-twitter-lekari-vizualni-nakupy/&cid=0&ei=P81lSeHfJpXM8ASzroz9BA&usg=AFQjCNFRQyn7_lNi9j461xPrLOBCLF-xUg">Webovinky 4 - Twitter, online lékařské poradny a vizuální nakupování</a>
LUPA, Czech Republic - <nobr>Dec 29, 2008</nobr>
Web PatientsLikeMe sice sdružuje relativně malou skupinu pacientů a pokrývá jen několik nemocí, přesto svým konceptem patří k nejužitečnějším. ...

[edit] Health Business Blog " Blog Archive " Interview with PatientsLikeMe CEO and co-founder Ben Heywood

27 December 2008, by ajhaveri80

[edit] The next disruptors - September 1, 2007

27 December 2008, by ajhaveri80

[edit] PatientsLikeMe : About Us

27 December 2008, by ajhaveri80

[edit] The Value of Openness: The PatientsLikeMe Blog " The Value of Openness

27 December 2008, by ajhaveri80

[edit] PatientsLikeMe - Medicine - Doctors - Computers and the Internet - New York Times

25 December 2008, by digipharma1 new york times article on patient community sites like PLM

[edit] PatientsLikeMe Named a Top Real World App of 2008

25 December 2008, by AdministratorPatientsLikeMe is an online community for people with life-changing medical conditions like multiple sclerosis, post-traumatic stress disorder, or fibromyalgia. Even though the site is still relatively new, it already provides one of ...

[edit] Talkibie " Archive " Health 2.0

24 December 2008, by digipharma1 key quote: “For patients with limited life expectancy, the ability to participate in a very rough, low-level clinical study on a new treatment is far more appealing and timely than waiting for clinical data to be published in peer reviewed literature.” When a person is told their life is in the fate of a disease I can imagine they want to take control and they can do so by means of clinical trials. If no one is willing to fund the study, who is going to do it if they don’t?

[edit] Two Research Papers Published on PatientsLikeMe | e-Patients.net

23 December 2008, by digipharma1 overview and commentary (and criticism) on 2 papers published on PLM

[edit] Support Updates: New Resources, Holiday Hours

23 December 2008, by Heather As some of you may have noticed, Support has new help pages, and is no longer in the old FAQ format. Rather than a list of answers to your questions, Support is now more like a knowledgebase, providing comprehensive overviews of features and tasks. Please feel free to contact us with your thoughts and suggestions on [...]

[edit] CAN PATIENTS CURE HEALTH CARE? | National Center for Policy Analysis

18 December 2008, by digipharma1 short solid summary of the PLM approach

[edit] 读写网:2008十大日常生活软件产品 - 中金在线

18 December 2008, by


<img alt="" height="1" width="1">
<a href="http://news.google.com/news/url?sa=T&ct=us/8-0&fd=A&url=http://news.cnfol.com/081218/101,1587,5227655,00.shtml&cid=1271440889&ei=P81lSeHfJpXM8ASzroz9BA&usg=AFQjCNHrUITrtXnQd-9hNfsU5wwZG9UqgA">读写网:2008十大日常生活软件产品</a>
中金在线, China - <nobr>Dec 18, 2008</nobr>
PatientsLikeMe 是一个在线患者社区网站。其患者疾病包括:多发性硬化病、外伤性神经失调症,以及纤维组织肌痛等。该网站是最大的患者社区,提供用于搜索病症和疗法的 ...

[edit] Living *WELL* with Fibromyalgia: ** Patientslikeme.com Launches ...

17 December 2008, by Minnie S. Lee I've joined patientslikeme.com and put up my profile. The website, which has been receiving some great accolades for their existing patient communities (ALS, MS, etc), is launching a community site for fibromyalgia, based on great ...

[edit] Top 10 Real World Web Apps of 2008 - ReadWriteWeb

17 December 2008, by

<a href="http://news.google.com/news/url?sa=T&ct=us/2i-0&fd=A&url=http://www.readwriteweb.com/archives/top_10_real_world_web_apps_of_2008.php&cid=0&ei=P81lSeHfJpXM8ASzroz9BA&usg=AFQjCNFRRwgXhEfN6PecMuVKZ5laTQ0Ytg"><img src=http://nt1.ggpht.com/news?imgefp=vR4wb24Hq6MJ&imgurl=www.readwriteweb.com/images/150-red-star.jpg width=80 height=80 alt="" border=1>
ReadWriteWeb</a>

<img alt="" height="1" width="1">
<a href="http://news.google.com/news/url?sa=T&ct=us/2-0&fd=A&url=http://www.readwriteweb.com/archives/top_10_real_world_web_apps_of_2008.php&cid=0&ei=P81lSeHfJpXM8ASzroz9BA&usg=AFQjCNFRRwgXhEfN6PecMuVKZ5laTQ0Ytg">Top 10 Real World Web Apps of 2008</a>
ReadWriteWeb, CA - <nobr>Dec 17, 2008</nobr>
PatientsLikeMe is an online community for people with life-changing medical conditions like Multiple Sclerosis, Post-Traumatic Stress Disorder, ...

[edit] Healthcare's Nine Most Pressing Issues - DOTmed.com (press release)

17 December 2008, by


<img alt="" height="1" width="1">
<a href="http://news.google.com/news/url?sa=T&ct=us/4-0&fd=A&url=http://www.dotmed.com/news/story/7662&cid=0&ei=P81lSeHfJpXM8ASzroz9BA&usg=AFQjCNFSvGD2nLGSQ2AUqS13KFyc3IV2yQ">Healthcare's Nine Most Pressing Issues</a>
DOTmed.com (press release), NY - <nobr>Dec 16, 2008</nobr>
The increased information and growing patient-to-patient interaction over social networking platforms and web sites such as patientslikeme.com and ...

[edit] Online: Improving the health care experience through social networking - Finance and Commerce

15 December 2008, by

<a href="http://news.google.com/news/url?sa=T&ct=us/1i-0&fd=A&url=http://www.finance-commerce.com/article.cfm/2008/12/16/Power-to-the-patient-Website-aims-to-improve-health-care-experience-via-social-networking-for-people&cid=0&ei=P81lSeHfJpXM8ASzroz9BA&usg=AFQjCNHXBU5ImZEjZ8cDYluZa0kxk3V5JA"><img src=http://nt2.ggpht.com/news?imgefp=jsYrcFGIBrgJ&imgurl=www.finance-commerce.com/images/articles/parmar-epihelp_c.jpg width=80 height=61 alt="" border=1>
Finance and Commerce</a>

<img alt="" height="1" width="1">
<a href="http://news.google.com/news/url?sa=T&ct=us/1-0&fd=A&url=http://www.finance-commerce.com/article.cfm/2008/12/16/Power-to-the-patient-Website-aims-to-improve-health-care-experience-via-social-networking-for-people&cid=0&ei=P81lSeHfJpXM8ASzroz9BA&usg=AFQjCNHXBU5ImZEjZ8cDYluZa0kxk3V5JA">Online: Improving the health care experience through social networking</a>
Finance and Commerce, MN - <nobr>Dec 15, 2008</nobr>
Another company is Cambridge, Mass-based PatientsLikeMe. David Williams III, its founding executive, said the company was formed in 2004, though the website ...

[edit] PatientsLikeMe.com Aggregates Data for Payer, Industry Applications - Atlantic Information Services, Inc.

15 December 2008, by


<img alt="" height="1" width="1">
<a href="http://news.google.com/news/url?sa=T&ct=us/0-0&fd=A&url=http://www.aishealth.com/Bnow/hbd121608.html&cid=0&ei=P81lSeHfJpXM8ASzroz9BA&usg=AFQjCNHYd9A0CC0E8UY0ivAZh1ibcdTmlg">PatientsLikeMe.com Aggregates Data for Payer, Industry Applications</a>
Atlantic Information Services, Inc., DC - <nobr>Dec 15, 2008</nobr>
By Michael E. Carbine, Editor, (mcarbine@aispub.com) PatientsLikeMe, a social networking Web site, provides an interactive online community for patients ...

[edit] The Value of Openness: The PatientsLikeMe Blog » Structuring and ...

15 December 2008, by jfrost PatientsLikeMe members share health data on the site adding their own individual-level health experience to a repository of structured outcome data. The result? An unprecedented data set that informs medical conversation not only within ...

[edit] Health 2.0: Patients as Partners - BusinessWeek

14 December 2008, by csrollyson

[edit] Media Uploader Overview

14 December 2008, by Heather We’ve responded to your suggestions and requests with some changes to your media upload options. You can now access all of your uploaded files through your Media Library, which is in your dashboard under the Media menu. Below the Library is Add New, through which you can upload files from your computer or the web. [...]

[edit] Research and Markets: US Health/Medical Website Evaluation Report ... - IT Business Net

12 December 2008, by


<img alt="" height="1" width="1">
<a href="http://news.google.com/news/url?sa=T&ct=us/5-0&fd=A&url=http://internet.itbusinessnet.com/articles/viewarticle.jsp%3Fid%3D606058&cid=1279899639&ei=P81lSeHfJpXM8ASzroz9BA&usg=AFQjCNHAYyhcVOI9HqaHfAceRXq_IkejGw">Research and Markets: US Health/Medical Website Evaluation Report ...</a>
IT Business Net, CA - <nobr>Dec 12, 2008</nobr>
Table 8: US online adult users rating "Patient Communities" sub-category websites (PatientsLikeMe, DailyStrength, WegoHealth, Trusera, CarePages) as very ...

[edit] CAN PATIENTS CURE HEALTH CARE? - National Center for Policy Analysis

12 December 2008, by


<img alt="" height="1" width="1">
<a href="http://news.google.com/news/url?sa=T&ct=us/3-0&fd=A&url=http://www.ncpa.org/sub/dpd/index.php%3FArticle_ID%3D17359&cid=0&ei=P81lSeHfJpXM8ASzroz9BA&usg=AFQjCNEfBnT2pLZAW1B0Wd65A6-P_luwhQ">CAN PATIENTS CURE HEALTH CARE?</a>
National Center for Policy Analysis, TX - <nobr>Dec 12, 2008</nobr>
Such a real-world experiment is under way at the Web-based social network PatientsLikeMe. The 2-year-old venture has already signed up 23000 participants in ...

[edit] Learning to Love Comment Moderation

12 December 2008, by Heather I’ll bet you never thought you’d see the day when you looked forward to moderating your comments, but this might just be it. Comment moderation has been vastly improved, with all kinds of little tools and changes to help keep things quick and painless. The Comments menu of your dashboard has a new, beautiful layout. Above [...]

[edit] QuickPress and Other Handy Post Options

11 December 2008, by Heather As you may have noticed, there’s a brand new way to post on your dashboard: QuickPress! There are also lots of other tools to help you write and edit drafts and published posts. QuickPress lets you post the basics straight from your dashboard, without navigating to the Posts menu. The essentials are all there: title, [...]

[edit] Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another's Data | Frost | Journal of Medical Internet Research

10 December 2008, by bouki

[edit] The Many Ways to Configure Your New Dashboard

10 December 2008, by Heather Back in the day (a week ago), what you saw was what you got when it came to your dashboard. Now, you’ve got total freedom to move things around and get rid of the stuff you don’t use. First, there’s dragging and dropping modules (boxes of content). Just grab the title bar of a module and [...]

[edit] Social Networking For Medical Patients, CBS Evening News: Patients Joining Forces Online To Find New Treatments - CBS News

9 December 2008, by martijnhulst

[edit] PatientsLikeMe keeps getting more famous

9 December 2008, by By Matthew Holt Here’s the CBS News clip that ran about PatientsLikeMe last week Of course you’ve probably already seen the Business Week article about Health 2.0 which quotes Jane Sarasohn-Kahn and little ol’ me. Cathy Arnst did a nice...

[edit] Social Networking For Medical Patients, CBS Evening News: Patients Joining Forces Online To Find New Treatments - CBS News

8 December 2008, by mlgambino

[edit] Introducing: Voices of Fibromyalgia

8 December 2008, by David S. Williams III Let your voice be heard. Join the PatientsLikeMe fibromyalgia community, share your experiences, and let’s work together to advance the knowledge of this disease. PatientsLikeMe member dwilliams.

[edit] The Health Care Blog: PatientsLikeMe keeps getting more famous

8 December 2008, by Matthew PatientsLikeMe keeps getting more famous. By Matthew Holt. Here’s the CBS News clip that ran about PatientsLikeMe last week. Of course you’ve probably already seen the Business Week article about Health 2.0 which quotes Jane ...

[edit] WordPress.com Goes Gravatar Crazy

8 December 2008, by apokalyptik Howdy there bloggers! You’ll no doubt remember that when we acquired Gravatar.com, just over a year ago, we intended to fully integrate it into WordPress.com. It’s been a long time coming, but we’ve finally replaced the WordPress.com avatar system with those Globally Recognized Avatars. What does this mean? It means your WordPress.com avatar can [...]

[edit] 43 Degrees, but it’s snowing

6 December 2008, by Matt It’s 43 degrees outside, which is I think as cold as it gets in San Francisco. But there’s no reason we can’t turn down the thermometer here on WordPress.com. That’s right, the snow is back! Last year we were a little tardy with adding it so to make up we’re giving you almost a full month of [...]

[edit] New Dashboard Design

5 December 2008, by Matt You’ve probably gotten tired of hearing about it from us, but the day has finally come and the new dashboard is finally here. It’s now immediately available to everyone on WordPress.com. Change is always tricky, but pretty much everyone who has already switched to the new design and layout (that we affectionately call Crazyhorse) prefers it [...]

[edit] 2.7 Gets Here in Two Days!

3 December 2008, by Jane Wells As promised, here is the advance notice that WordPress 2.7 is coming to WordPress.com, and will go live on Thursday, December 4, 2008 at 8pm Eastern Time. That’s 5pm Thursday in California, 1am Friday in London (UTC), 8am Friday in Jakarta, noon on Friday in Sydney…find your time here. Some people like to learn how to [...]

[edit] Today's Hero: Bobby Brannigan

21 November 2008, by November 21. We are happy to introduce you to Bobby Brannigan - our Hero on this clear and sunny Friday. Bobby has been part of this journey, keeping tabs on Ben's progress since the early days in New England. Not only has he been helping us to spread the word of 2175 through Internet Blogs and forums ...

[edit] Today's Hero: Stephen Heywood

20 November 2008, by Today, November 20th, we celebrate Stephen Heywood - and the Heywood family. Stephen was diagnosed with ALS when he was 29 and set off a chain of events that spurred  his brother to create the ALS Therapy Development Institute. Please take a moment to follow the links provided at the end of the article ...

[edit] Quid pro quo

19 November 2008, by Luke Wroblewski – Autor von Web Form Design – erläutert im Interview mit Lou Rosenfeld die Idee des »gradual engagement«: »A while back I worked with PatientsLikeMe. Their core objective is to allow people with serious medical conditions to find and learn from each other. To emphasize what ...

[edit] The Value of Openness: The PatientsLikeMe Blog » PatientsLikeMe ...

16 November 2008, by lscanlon PatientsLikeMe recently released a new PatientsLikeMeListen™ report: “Did the July 2008 PML announcement affect the Tysabri brand?” Among our findings, the report reveals that MS patients retained an overall positive perception of the ...

[edit] CommerceNet News: PatientsLikeMe Report Indicates MS Patients ...

7 November 2008, by unknown PatientsLikeMe, the leading online community for patients with life-changing conditions, announces the release of its newest PatientsLikeMeListen(TM) report: "Did the July 2008 PML announcement affect the Tysabri brand? ...

[edit] Sorstársak

5 November 2008, by Mivel egy újságcikk felkeltette az érdeklődésemet, meglátogattam a PatientsLikeMe.com honlapot. Rendkívül érdekes. A műfaja? Tulajdon...

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